My Story

Our Family
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I am not a journalist or writer so please bear with my grammar and spelling. My name is Nathan and I am a dedicated father to 3 beautiful little girls (Aubrey, Hayden & Sophia). This blog is going to be my way of showing other parents how I have fun interacting with my children. Parenting can be hard but having fun with your children is easy. Before we get into all kinds of trouble with our kids, please allow me to tell you a little bit about myself.

As a child I had multiple surgeries due to various heart defects. When people ask, I just say I have Tricuspid Atresia because that confuses people enough to avoid going into greater detail. To save some of you a trip to google, tricuspid atresia is the absence of the tricuspid valve. Due to that and other heart defects, I’ve had plenty of surgeries in my short time. In order to correct or repair those issues the Doctors had to break open my sternum which is now only held together by wires. The loose sternum later caused my spine to curve and gave me a 64 degree scoliosis curve.

My Junior year of high school completely changed my outlook on life. I went into atrial flutter on the Saturday before Labor Day. I could literally see my heart beating through my chest. I didn’t say anything because my brother was coming home for his birthday and I didn’t think much of it. The following Tuesday I went to school, made it through 2 periods and immediately felt horrible. I asked to see the nurse. As I walked down the hallway I fell to a knee before making it to the front office. I asked if the nurse was in and the secretary pointed and said the nurse was 2 doors over, I had passed it! There was a restroom here, I was hoping that I was just sick and would be able to throw up and be fine. I laid on that bathroom floor for around 5 minutes before checking my pulse and feeling my chest. I finally realized what was going on, I was dying. I remember telling myself “I can’t die on a bathroom floor!”, so I pull myself up and got to the nurse as fast as I could. That is all I remember of that day.

I was put on a couple of medications to control my heart rate and was put back into a home bound program. Later that year, I had another surgery and was implanted with a pacemaker. I knew then that I need to enjoy every minute I had. I see it as a mistake now, but I didn’t want to go to college because I saw it as a waste of my parents money. What’s the point of spending all that money if I was going to be dead soon. I started a family with my beautiful wife (Elizabeth) at the age of 19. I wanted to live a full life and if you fast forward to the present, I have.

I have always been sore and tired but I’ve tried my best to work throughout of all this and support my family. Over the last year my back has been starting to wear down. Pain shooting down my legs, severe back spasms, and constant discomfort. I put it off for as long as I possible could, I applied for disability at the beginning of September 2014. I was down, and life was about to kick me.

After leaving my job for my back pain, my wife took on our financial burden while we wait for a decision from the government. My wife starts making money and with the help of our family we are able to pay our bills. We are looking good. The last week of September I went into atrial flutter, again. In my best Chandler Bing impression. “Could the timing BE anymore wrong?”.  I was laying on the living room floor watching Amazing Race when it hit. I immediately checked my pulse, 130 bpm, CRAP! My wife rushed me to the hospital 50 miles away. After a day of observations it was decided that I was going to be “shocked” back into normal rhythm. The doctors put the pads on, give me propofol and I don’t come back right away. They had to do chest compressions, that is a scary thought. I’m back to “normal”…. I feel a little winded when I walk around and I’ve been banned from any real physical activity.

Here’s what it comes down to. I have 4 amazing girls in my life standing by my side and I want to have as much fun with them as I possibly can while I can. We are going to do some pretty fun stuff together and bring you along for the ride. We’ll make as many videos as we can and try to share our experiences with you. I hope you enjoy watching us and reading about us as much as I enjoy spending time with these girls. Maybe you can get a few ideas from us and learn to have a little more fun too. Thank you for visiting our website and we hope to see you around.

 

 

 

 

7 Responses to My Story

  1. Marcus Keller says:

    Great dad bog Nathan. Reading your story brings back memories of my life with TA. Take care my friend.
    Marcus

  2. Aunt Reba says:

    Very good, but I noticed you didn’t mention your back surgery.

  3. Jamie Haag says:

    What a BEAUTIFUL family you have!! Those girls are just so precious! Thank you for sharing your story, which was very well written by the way. My son is 17 months with TA. I look forward to reading more of your journey.

  4. Wow that was odd. I just wrote an incredibly long comment but after
    I clicked submit my comment didn’t show up. Grrrr…
    well I’m not writing all that over again. Anyway, just wanted to say superb blog!

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